Enhance your NF Conference experience by joining one or more optional satellite meetings, included with your registration. These focused sessions provide additional opportunities to explore specialized topics, gain hands-on experience, and connect with experts and collaborators across the NF research and clinical community.
Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) 2026 Summer Meeting
Open to all patient advocates and clinician–researchers
The 2026 REiNS Summer Meeting will explore innovative ways to evaluate real-world impacts of NF and schwannomatosis treatments—beyond traditional clinical outcomes. Discussions will focus on measuring quality-of-life factors such as employment, education, relationships, and independent living, ensuring that future trials reflect what truly matters to patients.
Specific 2026 Themes will be shared closer to the event. Please check back for updates.
Accelerating NF Research Through Data Sharing and Collaboration
Join the Children's Tumor Foundation, Sage Bionetworks, and Pluto Biosciences for an interactive workshop exploring tools, resources, and initiatives designed to advance neurofibromatosis research through data reuse and collaboration.
Participants will discover practical insights into the NF Data Portal and learn about the latest advances in research data sharing, reuse, and collaborative innovation across the NF research community.
Who Should Attend
Open to participants of all experience levels, this session is ideal for researchers and clinicians interested in:
About This Event
This satellite meeting reflects CTF's ongoing commitment to accelerating research through FAIR data principles, resource sharing, and open collaboration. Full session details and presenter information will be announced soon.