Agenda

Information & Help Desk is also open at this time. 

Information & Help Desk is also open at this time. 

Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) 2026 Summer Meeting

Open to all patient advocates and clinician researchers

Participation in this program is by invitation only. 

Program Co-Chairs: 

Laura Klesse MD, PhD - UT Southwestern Medical Center; Tena Rosser, MD - Children's Hospital of Los Angeles; Nicole Ullrich, MD, PhD - Harvard University

Continuing Medical Education (CME) credits will be offered for this session.

Space is limited, RVSP required. Contact clinics@ctf.org for more info.

Program Co-Chairs: 

Laura Klesse MD, PhD - UT Southwestern Medical Center; Tena Rosser, MD - Children's Hospital of Los Angeles; Nicole Ullrich, MD, PhD - Harvard University

Continuing Medical Education (CME) credits will be offered for this session.

Participants will discover practical insights into the NF Data Portal and learn about the latest advances in research data sharing, reuse, and collaborative innovation across the NF research community. Please share your interest in the workshop here. https://docs.google.com/forms/d/e/1FAIpQLSeQJtk4426gzjkZhYHLNboc3KahrJgpBHQArOw2bpD_ggNIsA/viewform

Session Co-Chairs: 

Helen Morrison, PhD - Fritz Lipmann Institute (FLI); David Parkinson -  University of Plymouth; Daochun Sun, PhD - Medical College of Wisconsin

Information & Help Desk is also open at this time. 

Session Co-Chairs: 

Helen Morrison, PhD - Fritz Lipmann Institute (FLI); David Parkinson -  University of Plymouth; Daochun Sun, PhD - Medical College of Wisconsin

Session Co-Chairs: 

Miriam Bornhorst, MD - Lurie Children's Hospital; Kathryn Lemberg, MD, PhD - Johns Hopkins University

Session Co-Chairs: 

Dale Berg - Patient Advocate 

David Pang, MD, ChB - Guys and St Thomas' Hospital NHS Trust

Twelve Semi-Finalists for the 2025 NF Conference Poster Competition will present a one-slide, one-minute pitch (‘poster advertisement’) to Conference attendees. 

Six semi-finalists from each main category (Basic/Preclinical and Clinical) were pre-selected from poster abstracts, and a panel of judges will select three finalists from each main category during the Combined Poster Session. Finalists will be announced by midday on Monday. All six finalists will have the opportunity to present their work in a 7-minute presentation, with 3 minutes of Q&A on Tuesday morning.

Basic / Preclinical Science and Clinical Science Poster Presentations. Refreshments will be served.

Information & Help Desk is also open at this time. 

Session Co-Chairs: 

Lu Le, MD, PhD - University of Virginia; Nancy Ratner, PhD - Cincinnati Children's Hospital; Lindy Zhang, MD, PhD - Johns Hopkins University

Finalists will give a platform presentation with time for Q&A

Session Co-Chairs: 

Corina Anastasaki, PhD - Washington University in St. Louis; Benjamin Housden, PhD - University of Exeter; Liyam Laraba, PhD - University of Plymouth

Session Co-Chairs: 

Corina Anastasaki, PhD - Washington University in St. Louis; Benjamin Housden, PhD - University of Exeter; Liyam Laraba, PhD - University of Plymouth